About
Michael Hund, MBA, is the Chief Executive Officer of EB Research Partnership, a…
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Publications
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The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers
Orphanet Journal of Rare Diseases
Survey responses demonstrate that epidermolysis bullosa places a considerable burden on patients, their caregivers, and their families. The limitations caused by epidermolysis bullosa mean that both patients and caregivers must make difficult choices and compromises regarding education, career, and home life. Finally, survey results indicate that epidermolysis bullosa negatively impacts quality of life and causes financial burden to patients and their families.
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