Rare Disease Relief for Ukrainian Refugees
As leaders and colleagues of rare disease companies, we are asking for your collaboration with helping children and families with rare diseases attempting to flee Ukraine. We are working with Global Genes to identify, align and deploy our company resources for rare disease patients.
While our efforts are still early and in progress, if you have a desire to join us, we ask that you let us know the type of resources you would contemplate committing to a centralized source via Global Genes.